Black Albinism

About us

Black Albinism (BA) is a youth led pro-disability organization at the forefront of advancing the rights of people with albinism through advocacy and implementation of inclusive programs for people with albinism. Black Albinism’s mandate and interventions include inclusive economic empowerment, digital literacy trainings, talent development, inclusive sports, inclusive climate change programs among other interventions.

Social Inclusion: Improving the ability, opportunity, and dignity of those disadvantaged on the basis of their identity.

BA Initiatives:
• BA Football Club: On the premise of sport for Development [S4D}, Black albinism uses football to achieve crucial social outcomes for persons with albinism in areas such as learning, health, empowerment and protection. Black Albinism Football Club is a sports program of the Black Albinism Initiative. With the understanding that football has the capacity to transform the lives of individuals, It bolsters physical, psychological, emotional, and social well-being and development and at the same time football playing a significant role in cultures and communities, the club leverage's all these to create awareness about albinism. Because the club is a model of inclusion, our playing team is comprised of eighty percent (80%) persons with albinism and twenty percent (20%) persons without albinism and we look forward to this percentage going higher.
• BA Chama: The impact of albinism on families can be significant, especially in societies where myths and misconceptions about the condition are prevalent. These misconceptions can lead to stigma and discrimination, which can have a profound effect on both the child with albinism and their family. Oftentimes, mothers may be left to raise their child with albinism on their own, leading to financial and emotional strain. Without access to education, healthcare, and other resources, people with albinism and their families may struggle with poverty and limited opportunities for economic participation. The chama phenomenon arose out of the idea of harambee, which means "all together". Persons with albinism together with their parents and friends, join efforts to reed themselves of the shackles of poverty.
• BA Advocacy: Through our advocacy work, we aim to influence decisions within political, economic, and social institutions, to enhance civic engagement and social inclusion of persons with albinism so as to archive disability inclusion.
• Climate change and Albinism: The impact of albinism on families can be significant, especially in societies where myths and misconceptions about the condition are prevalent. These misconceptions can lead to stigma and discrimination, which can have a profound effect on both the child with albinism and their family. Oftentimes, mothers may be left to raise their child with albinism on their own, leading to financial and emotional strain. Without access to education, healthcare, and other resources, people with albinism and their families may struggle with poverty and limited opportunities for economic participation.

Alan Herbert is the Executive Director and Founder of Black Albinism (BA).

For other net participants we can offer an expert guidance through trained staff, give an expert opinion, procure expert information and establish new contacts in the field of our work.