Sickle Cell Association of Uganda (SAU)

Qui sommes-nous

Sickle cell Association of Uganda (SAU) is a charity organization that was founded in July 2000 by concerned patients. It was registered as a Non-Governmental Organization in February 2007. It advocates for the rights of Sickle cell patients, improvement of the diagnostic and clinical services for patients and creates awareness about the disease.
Sickle Cell Association of Uganda (SAU) is now one of the grass roots organization representing the interests of patients in Uganda. We strive to change the perception that the majority of the population has in Uganda about the disease - that those who have this disease are worthless people in society, worth stigmatizing and discriminating against. Through counselling and education we strive to improve the lives of these families.

Vision Statement
A Sickle Cell Free Uganda

Mission Statement
Creating awareness and early testing of the sickle cell disease while ensuring a healthy life for those suffering from the disease

Our strategy
• Awareness on sickle cell disease
• Psychosocial support, i.e. improve the productivity and quality of life of Sickle cell patients and their families.
• Advocacy and networking
• Reproductive health
• Capacity development

Our Programs:
• Daily educational and counselling services
• Outreach programmes to up country districts
• Advocacy for patient’s rights
Genetic counselling:
• Referral for Sickle cell testing
• Pre-marital counselling
• Collaborate with Mulago hospital and Sickle cell Clinic to improve Sickle cell education among patients and families
• Support evicted teenage Sickle cell pregnancies
• Counsel divorced mothers because of Sickle cell babies
• Educate religious leaders about Sickle cell disease

Project:
• Sickle cell Centre: It will be constructed at Kawanda- Namalere. About 8 miles from Kampala city.

Annet Nakanyike is the Administration Manager, Counsellor and a trainer of trainees at Sickle cell Association of Uganda (SAU).

For other net participants we can offer an expert guidance through trained staff, give an expert opinion, procure expert information and establish new contacts in the field of our work.